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Brain Injury Help Line: 1-800-242-0030


calendar Click on the calendar to find scheduled support groups, workshops, and events. For more detailed information on BIA-MA upcoming events, go to our News and Events web page.

stories

Ryan Farrell

"My recovery continues each day"
Ryan was performing with her cheering squad when a flyer on top of her stunt group fell and landed on her. A short time later, she collapsed and did not regain consciousness. She had sustained a traumatic brain injury (TBI), along with a collapsed lung and fractured vertebrae in her neck. Read Ryan's story

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Advocacy

BIAMA advocacyThe Brain Injury Assocation of Massachusetts (BIA-MA) advocates for the support and prevention of the brain injury community. BIA-MA advocates for the MRC to increase budgets (for brain injury supports and services), safety laws (seat belts and helmets), and legislation affecting commercial insurance coverage (Cog-Rehab Bill). Our legislative efforts are enhanced by the hard work of individuals across the state.

There are currently two BIA-MA advocacy efforts, click on the subject to see more informaiton:

  1. The FY'17 MRC SHIP Budget Ask (funded by line item 4120-6000)
  2. The Cognitive-Rehabilitation Bill

Advocacy Day at the State House - February 3, 2016

What a success! On February 3, 2016, BIA-MA held an Advocacy Day at the Massachusetts State House. Over 200 legislators, brain injury survivors, volunteers, and BIA-MA employees attended this event, held at Grand Staircase on the second floor. This event was held to emphasize the importance of continued legislation to bring services and supports to individuals with brain injury. read more

 


Mass Health Policy Forum - December 10, 2015

A Massachusetts Health Policy Forum on “Severe Brain Injury in Massachusetts: Assessing the Continuum of Care”, sponsored by the Brain Injury Association of Massachusetts and Supportive Living, Inc., was held at the Omni Parker House Hotel in Boston on December 10th, 2015.  This forum examined the treatment and service disparities for survivors of severe brain injury in light of coverage expansions and health care system and financing changes under state and national reform. 

Acquired brain injury is a major public health problem in Massachusetts, yet many patients with brain injury are not receiving services after initial treatment that are known to be effective, such as post-acute rehabilitation, case management and brain injury specific community programming. While good emergency care saves lives after a severe brain injury, access to rehabilitation in the chronic phase of severe brain injury is limited in Massachusetts, despite evidence that access at this critical phase improves outcomes.

A report and issue brief, prepared by Laura Lorenz, PhD, MEd and Gabrielle Katz, MPP candidate, was released at this forum and outlines recommendations to improve access across the continuum of care.  Research was brought forward to quantify the problems, costs, and the potential consequences to both the brain injury survivors and the state as a whole.  In addition the forum explored potential options and action steps to reduce disparities and move towards a more equitable distribution of critical resources.

A stakeholders panel was moderated by Christine Griffin, Executive Director, Disability Law Center, with panelists: Nicky Osborne, Commissioner, Massachusetts Rehabilitation Commission; Marilyn Price Spivak, Neurotrauma Outreach Coordinator, Spaulding Rehabilitation Hospital and co-founder and past president of the National Head Injury Foundation; and Mary Roach, President and founding partner, Neuro-Rehab Management, Inc.

The Massachusetts Health Policy Forum, located at Brandeis University, is an independent nonpartisan organization dedicated to improving the health care system in the Commonwealth by convening forums and presenting the highest quality research to legislators, stakeholders and the public.

Click here to view the Mass Health Forum Video  

Advocacy in the News


Acquired Brain Injury (ABI) Education Event (April 9, 2015)
Senator Harriette L. Chandler & Representative Kimberly Ferguson are pleased to sponsor the Acquired Brain Injury (ABI) Education Event to be held Thursday, April 9, 2015 from 2pm to 3pm at the Massachusetts State House, Room 428. Read more.
Nikki Osborne appointed Commissioner of MRC (March 27, 2015)
Adelaide “Nicky” Osborne, Director of Brain Injury and Statewide Specialized Community Services at the Massachusetts Rehabilitation Commission (MRC), has been tapped by Governor Charlie Baker and Health and Human Services Secretary Marylou Sudders to lead that agency. She will immediately begin her new role as Commissioner. Read More.
Faces of Brain Injury Exhibit (March 2015)
Survivors of Brain Injury Featured in “Faces of Brain Injury” Exhibit At the Massachusetts State House, Doric Hall, March 2-6. During March, Brain Injury Awareness Month, ten survivors will share their personal stories as part of the “Faces of Brain Injury” exhibit at the Massachusetts State House. Read more.

Click here to get up-to-the-minute news from the MRC Newsroom

BIA-MA instrumental in extra $1 million in MRC FY'16 budget!

As of March 2015 there were 3,022 individuals who had suffered a TBI and were eligible for services through the Massachusetts Rehabilitation Commission (MRC). The total amount of funding required to meet the needs of these individuals is $35 million. BIA-MA is advocating for an FY’16 Ask of $22.8 million (an additional $7.2 million over the FY’15 budget). Increasing funding on a proportional basis over the next three years will allow for full implementation of the service recommendations stated in the Brain Injury Commission Report.

View a summary of the FY'16 MRC Budget Ask

2014 Epidemiology Report Identifies Gaps in Supports and Services

Gaps in services for survivors of brain injury in Massachusetts were identified in a report released by a statewide Brain Injury Commission. Under the bipartisan leadership of Senator Harriette L. Chandler (D-Worcester) and Representation Kimberly Ferguson (R-Holden). Members of the commission included representatives from healthcare, state government, and the private sector.

The final report was written in collaboration with the Brain Injury Association of Massachusetts (BIA-MA). Observed gaps in services include: case management services, day programs, social/recreation services, post-acute rehabilitation services, MassHealth PCA services, technical assistance, transportation, and other services needs.

View the 2014 Massachusetts Brain Injury Commission Report.

BIA-MA's Legislative Successes:

  • Instrumental in obtaining an extra $1 million for MRC line item 4120-6000 in FY'16 Ask
  • Hutchinson v. Patrick Class Action Settlement
  • Supported passage of Shaken Baby Syndrome Law
  • Instrumental in passage of secondary Seat Belt Law
  • Established HITS, financed by surcharges on drunk driving and speeding
  • Instrumental in the establishment of the Statewide Head Injury Program (SHIP), which funds community-based and other support servies for persons with traumatic brain injury

For more information about Advocacy at BIA-MA, contact Kelly Buttiglieri at 508-475-0032 or kbuttiglieri@biama.org