BIAMA Logo

  

Home

About

Contact

Donate

Brain Injury Help Line: 1-800-242-0030


connectfacebook logotwitter logoPinterest LogoyoutubepicasaView BIA-MA's Blog

Advocacy

BIAMA advocacyThe Brain Injury Association of Massachusetts (BIA-MA) advocates for supports and services for the brain injury community (MRC SHIP budget), safety laws for the public (concussions, seat belts, helmets, distracted driving, hands free cell phone), and legislative bills affecting commercial insurance coverage (Cog-Rehab Bill). Our legislative efforts are enhanced by the hard work of individuals across the state.

BIA-MA's advocacy efforts, click for more information:

  1. Cognitive Rehabilitation (An Act Improving Lives by Ensuring Access to BI Treatment)
  2. FY'22 MRC SHIP BUDGET ASK
  3. Brain Injury Commission - 2019
  4. Federal Initiatives

What Massachusetts Patients with Disabilities Need to Know During the COVID-19 Pandemic

The Brain Injury Association of Massachusetts is an active stakeholder in efforts to advocate for persons with disabilities during the COVID-19 pandemic. Spearheaded by the Center for Public Representation (CPR) and the Disability Law Center (DLC), in collaboration with community-based organizations representing persons with disabilities, older adults, and civil rights these efforts have focused on vaccine allocations, crisis standards of care, and health equity issues.

Below is a fact sheet explaining the rights of individuals with respect to health care rationing and accommodation, which is being provided to you as persons with brain injury, family members or professionals. We also request your assistance with distributing this information by forwarding this attachment to others to whom the guidelines may apply, as well as other individuals providing services and supports to individuals with brain injury.

Download document: WHAT MASSACHUSETTS PATIENTS WITH DISABILITIES NEED TO KNOW DURING THE COVID-19 PANDEMIC

Additional information may be obtained from the following websites and sources:

Center for Public Representation: 617-965-0776 or visit www.centerforpublicrep.org

Disability Law Center: 800-872-9992 or visit www.dlc-ma.org

Massachusetts Department of Public Health: 617-624-6000 or visit mass.gov for Information on the Outbreak of Coronavirus Disease 2019 (COVID-19), where information on the vaccine rollout may also be found

 

Brain Injury Needs Assessment

In July 2016, the Massachusetts Rehabilitation Commission contracted with Public Consulting Group, Inc. to perform a Needs Assessment of the short and long-term service needs of individuals with brain injuries.  The goal of the Needs Assessment was to provide MRC with meaningful and actionable recommendations aimed at improving the services and supports for all individuals with a brain injury in Massachusetts. The primary findings of the report:

        -Survivors of brain injury and their families have difficulty in finding services and support due to the complexity of the service system and the scarcity of resources for individuals with brain injuries, particularly acquired brain injury.

-Individuals with brain injury caused by stroke, disease and other non-traumatic causes who are living in the community are not able to access state services other than a very few programs

Click here to view the Needs Assessment

Epidemiology Report

One of the priorities of the Brain Injury Commission was to complete an epidemiological study of ABI in Massachusetts.  The findings of the proposed study were judged to be critical to informing the development of long-term community-based support services for both adults and children living with acquired brain injury.  Critical gaps in services for survivors of brain injury in Massachusetts were identified in this study.

The Executive Office of Health and Human Services requested that the Department of Public Health, design and complete an epidemiological study of the ABI population in Massachusetts, including an estimate of the magnitude of the population; affected age groups; region of residence; and other pertinent descriptive information for the major subcategories of ABI, including traumatic, neoplastic, infectious, vascular and metabolic causes of brain injury.

Click here to view the Epidemiology Report

BIA-MA's Legislative Successes:

  • FY ’20 an additional $3,180,157 (22%) over FY ’19 for the Statewide Head Injury Program (SHIP), line item 4120-6000.
  • FY ’19---an additional $750,000 for the Statewide Head Injury Program (SHIP), line item #4120-6000.
  • Active in obtaining an extra $1 million for MRC, line item # 4120-6000 in FY ’16, to fund a pilot community center to be located in Worcester.
  • Re-established the Brain Injury Commission.
  • Hutchinson vs Patrick Class Action Settlement.
  • Supported passage of Shaken Baby Syndrome Law.
  • Instrumental in passage of secondary Seat Belt Law.
  • Established HITS, financed by surcharges on drunk driving and speeding.
  • Leading in establishment of the Statewide Head Injury Program (SHIP), which funds community-based and other support services for persons with traumatic brain injury.
  • Click here for letter to senators

For more information about Advocacy at BIA-MA, contact Kelly Buttiglieri at 508-475-0032 or kbuttiglieri@biama.org